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Halloween and How to Upset the Elderly

My favorite holiday is just around the corner: Halloween.

Witches, ghosts, candy, and people making bad decisions in horror movies; what’s not to love about the season of spooks?

Back when I was a spirited ten year-old, I spent my school days experiencing crippling anxiety brainstorming ideas for my Halloween costume using precise, statistical formulas:

halloween-notebook

After careful meditation and self-reflection, I chose what my ten year-old self believed to be the most creative, hilarious costume yet: A CEREAL KILLER.

Yes, you read that correctly. CEREAL. It was like being a serial killer with less serial and more CEREAL.

This was set to be the best Halloween ever.

The Big Day

October 31st finally arrived after what seemed like several lifetimes. Preparing my cereal killer costume took a lot of preparation. I had to collect – and eat – numerous mini boxes of cereal. Then, I had to stab each of the boxes with a plastic knife and paint fake blood gushing from the wound. Finally, I taped each box to my clothes, and added some blood splatter on my face for mood enhancement, and then I was ready to go.

cereal-killer

Momsy liked the costume because it was cheap and easy. She simply had to buy the cereal, which I ate anyway. It was a win-win. Dad was also a fan because he liked simple yet humorous costumes. In fact, for several years in a row, my Dad was a leaf blower:

leaf-blower

As dusk emerged, I sprinted with my friends to the first house for some sugary gems.

However, after visiting a few houses, a pattern began to materialize. Whenever someone old answered the door, they appeared heavily distressed by my costume.

trick-or-treat-1

little-girl

cereal-killer-2

trick-or-treat-3

trick-or-treat-4

trick-or-treat-5

trick-or-treat-6

trick-or-treat

trick-or-treat-7

trick-or-treat-8

trick-or-treat-10

trick-or-treat-9

Yet house after house of elderly folks, the reaction upon seeing my costume was the same. I became a bit dismayed. Young people, even those delightful middle-aged homeowners, seemed to enjoy my costume. But those elders….not so much. Was it the thought of their beloved Fiber One cereal being gruesomely murdered too much to bear?

New Beginnings

stink-on-ice

Dad was right. I didn’t need the approval of wrinkly people to enjoy my Halloween festivities! Nay. My costume was funny and creative and definitely unique. If I was going to continue my trick-or-treating as a cereal killer, than darn it all, I was going to be the most terrifying cereal killer around. And I was going to do it with style.

stink-on-ice-2

stink-on-ice-3

cereal-killer-3

trick-or-treat-11

cereal-killer-4

Moral of the story: always be true to yourself… especially if you’re a ten year-old cereal killer.

And to my senior friends: You better take good care of your fiber-filled breakfasts. I may be stopping by your house….for MURDERRRRRRRRRRRR.

bran-flakes

 

xo kelly

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True Tales: Owl Encounter

It was just an ordinary Thursday evening, or so I thought.

I was up to one of my usual activities: sewing. (Note: I may or may not be a wrinkly old lady trapped inside the body of a super attractive young woman.)

In the middle of stitching away my emotional pain, I heard a ruckus from the other side of my house. (Well, my parent’s house. I don’t own a house. I have no money.)

owl 1

owl 2

When you live in the wilderness as I do, you know that bird behavior is very indicative of the state of the environment. Meaning, if the birds are freaking out, something’s going on. And that something is usually a predator.

To my absolute and total delight, that predator happened to be an owl. A barred owl, in fact. If it wasn’t obvious from my owl hat that I’m really into flying creatures (especially owls) let it be known: I’m really into owls.

owl 4

The barred owl – the elusive animal that it is – is rarely seen, but often heard. They are known as the “who-cooks-for-you” owl, as their hoot sounds bizarre and more like a monkey on steroids than a majestic bird. Believe me though, this is a creature of pure elegance.

It was clear that the owl had arrived to reunite with me and connect spirits.

owl 3

Through years of practice and experience, I have essentially mastered the barred owl call. However, it is still a mystery as to why no owls flock to me when I perform the tune with perfection and grace.

owl 5

From what I could tell, the owl was really paying attention. His face said “focus and concentration.” He was into it.

owl 6

Suddenly, a bird flew from another dimension and BOOPED my owl friend right in the face!

owl 7

Though annoyed, the owl did not move from his branch. Instead, his expression changed from “mildly irritated” to “apathetic slow burn.”

owl 8

Meanwhile, I sprinted inside to grab my cheap pair of binoculars. If this was going to be an evening of  intense owl observation and possible spirit connection, I needed to be prepared.

owl 9

Just as I focused my lenses on the owl, it took off into the dense woods. My world, once warm and illuminated, was now dark and lifeless as Voldemort himself.

owl 10

owl 11

owl 12

Eternity passed – although admittedly it was only a few minutes –  before my owl friend reappeared. This time, he was on the opposite side of our backyard. I maneuvered my way closer in what could only be described as a “slow dash.” As in, I was trying to go as fast as possible while simultaneously moving at a snail’s pace, as to not frighten the owl. (In some cultures, I’m certain these same bodily movements are used to summon spirits and curses.)

owl 13

Momsy and Sister came outside to catch the action.

OWL 14

owl 16

In my mind, I pictured the moment to be intense, in a spiritual-enlightenment kind of way. It wasn’t like that though.

owl 17

 

A Few Days Later

A miracle was about to occur in my life and I was not emotionally prepared for it. Just a few days after my first owl encounter, I heard the familiar screech from the woods. I went outside with my binoculars, hoping to catch another glimpse.

I was not expecting what would happen next.

I spotted the owl on a low hanging branch. Suddenly, I heard an identical screech but from another tree! To my utter delight, two owls appeared on the branch together. My excitement was overwhelming.

Could this moment possibly get any better?!

As if the universe was hearing my informal plea, a THIRD owl made itself comfortable on the branch next to the others, who weren’t exactly happy to share the space. Nevertheless, it was a magical and remarkable moment for me. I have low standards for happiness.

OWL 19

owl 20

And that, quirksters, is the end of this story. Darkness overtook the sky, and I stood below a tree watching my winged friends until I could no longer see my own hand in front of my face.

It was a moment I will remember for a long time to come (but honestly will forget most of the details in a week).

xo kelly

 

 

SPD Diagnosis in Adulthood

Here is a fun fact according to many medical professionals: children with sensory processing disorder grow out of their sensory issues, and become well-adapted teens and adults.

 

In a previous post I coined the phrase: people grow out of sweaters, not neurological conditions.
I know this is true because nearly every week I read about a new person realizing that they have had sensory issues since childhood and these same problems continue to plague them in adulthood. However, these adults struggle to find a doctor willing to help them.

So this leads me to my next conundrum. Due to the belief that SPD is a disorder of childhood – WHICH WE GENIUSES OF THE INTERNET KNOW TO BE NOT TRUEanother belief now exists that there are no adults suffering with SPD. I use the term suffering because I’m almost certain nobody that has this condition actually enjoys it.

love having spd

Because of this idea that adults don’t have SPD, and doctors don’t always recognize it, we cannot get treatment or help OR ANYTHING because apparently we are not legit.

Story time:

Start from the Beginning

When I was thirteen years old, I went to a occupational therapist to talk about my worsening sensory issues. I was previously diagnosed with SPD at age 6, and 10 by an OT. Here’s a little summary of what happened:

it looks like

I know

grow out of it

info

goodbye forever

thank you for nothing

The end.

The OT handed me a piece of paper containing information about how to create a good sensory diet, AKA things I already knew.  My experience mirrors that of countless others, who, as adults, were unable to receive actual therapy beyond a consultation from an OT solely due to their age. Even worse, most adults who believe they have SPD cannot find an OT who will see them just once for a consultation.

I don’t know of any other condition where this happens. Age should not be a factor in being able to receive treatment for a possible neurological disorder. And so I thought to myself, “Self, it’s time to investigate.”

Find me an OT!

I took it upon myself to pretend to find an OT in my area that would work with SPD adults. Trusty ‘ol Google helped me out with this. I am not lying when I say that every single place that offered occupational therapy services in my area were clearly places for children:

Pediatric This; Pediatric That; Fun in the Sun OT; Big Leaps OT;  Little Hearts OT. You get the picture.

Strangely, back in the early 90’s when my Momsy was desperate to get me some help, she had a very hard time finding an OT that would work with children! I kid you not. OT was an adult thing. My my, how the times have changed!

Like with other neurological conditions, people like to pretend that once children grow up, the problems don’t exist anymore. It’s like the Magical Neuro Fairy waves his wand and the problems are gone! AMAZING!

poof

What now?

How do you get a diagnosis or even better – TREATMENT – for Sensory Processing Disorder as an adult?

I don’t know.

The world of Occupational Therapy and SPD seem to revolve around children and children alone. I don’t know why this is, when there are clearly so many adults with sensory issues.

However, I’ve created a list of ways that will give you the best chance of getting a diagnosis:

  1. Contact any and all OT’s in your area and ask if they’re willing to meet with you (yes, call the OT center for children. You have nothing to lose). Even if they aren’t willing to do actual therapy with you, at least they can screen you and tell you whether or not your issues are sensory related.
  2. If option 1 doesn’t work, speak with your regular doctor and ask for a referral to see a specialist, such as an neurologist or psychologist/psychiatrist. There is a small chance that they can help you with your sensory issues. This is a neurological condition after all.

 

Crap. That list was shorter than I expected.

What to do if Kelly’s list didn’t work because it was too short:

Luckily, Sensory Processing Disorder is one of those problems that you can successfully manage on your own, without the help of an OT or medical professional. There is an abundance of information online – as well as in print – to guide SPD’ers of any age.

Here is my new list of what to do if you believe you have SPD but are unable to get a diagnosis/treatment because of your age (or any other reason):

  1. Go to a library, bookstore, or Amazon.com and get the following books: 
    1. Making Sense: A Guide to Sensory Issues by Rachel S. Schneider
    2. The Out-of-Sync Child Grows Up by Carol Kranowitz
    3. Uptight and Off Center: How Sensory Processing Disorder Throws Adults Off Balance and How to Create Stability by Sharon Heller
    4. Too Loud, Too Bright, Too Fast, Too Tight: What to Do If You Are Sensory Defensive in an Overstimulating World by Sharon Heller
  2. Create your own Sensory Diet. What is a Sensory Diet? A Sensory Diet is a treatment plan that will help you throughout your day to manage your sensory issues. The “diet” usually consists of various sensory-related activities that help regulate and calm your specific sensory woes. For example, using a Wilbarger Brush 3 times a day, or using Chew Toys can be part of a sensory diet. Each person is different, and so each Sensory Diet will be different too.
  3. Join support groups for adults with Sensory Processing Disorder. I am currently an administrator for the Facebook group, Sensory Processing Disorder Adult Support. The page provides great emotional support and answers for SPD adults, both diagnosed and undiagnosed. There may also be support groups that meet in-person within your community.
  4. Find a mental health counselor or therapist to guide you through the other crapsauce that comes along with dealing with sensory issues. It’s not all about OT, you know. We are people, and people have feelings.

For the record, it’s very much OK to not have an SPD diagnosis. This is not a life-or-death condition, even though it can be a this-is-ruining-my-life condition. A diagnosis will not change how you approach your own life, and how you go about being proactive about your sensory issues. (An exception to this would be if you need a diagnosis for work or school modifications. In that case, a doctor or even a therapist may be able to sort out your educational/vocational issues without having to give you an “official” SPD diagnosis.)

I hope this was helpful to you, and if it wasn’t…then I’m not sorry because I did take a lot of time to look into this (hahaha).  However, I am sorry that the world isn’t up-to-speed with how to best help adults with sensory issues. It really sucks. Until that time, be your own advocate, and have some cake/cupcakes my friends.

cupcake

xo kelly

 

SPD is not a “dubious diagnosis”

There I was, spending a quiet evening at home, munching diligently on some freshly-baked oatmeal cookies when my eyes scanned the internet headline “Why ‘Sensory Integration Disorder’ Is A Dubious Diagnosis.” The author of the article, Peter L. Heilbroner, MD, PhD, states that Sensory Processing Disorder (or Sensory Integration Disorder, as it’s also known) is not a real condition.

cookies yay

As I began to violently shovel oatmeal cookies into my mouth, I read and re-read his article over and over. Below, I have written a counter-argument, because I believe Sensory Processing Disorder is real and those of us with SPD deserve advocacy. Since I am an adult with SPD, I will do the advocating!

 

His argument:

“Many children with autism have “sensory issues” such as oversensitivity to touch. Similar symptoms occur with other neurodevelopmental and behavioral problems (including attention-deficit/hyperactivity disorder) and anxiety disorders. However, the prevailing medical view is that “sensory symptoms” are a nonspecific indicator of neurodevelopmental immaturity rather than a distinct disorder. Such symptoms can also occur in children considered normal.”

My argument:

Yes, many children with autism do have sensory issues, as do children with various other neurological disorders. And yes, sensory issues can come about throughout early childhood as the brain is still developing and growing, and this is totally normal.

But, when children are struggling for long periods of time with basic sensory-related acts, it’s time to question whether or not that child is neurologically immature, or if there’s an actual problem with the child’s neurology that needs fixing.

 

His argument:

“Moreover, except in cases of autism, these sensory symptoms are virtually always outgrown. Do you know of any non-autistic adults with the type of “sensory problems” said to occur in SID? I work in the largest neurology group in my state. Although we see every conceivable neurological complaint, I have yet to hear from my colleagues of even one case of “SID” in an adult. In my experience, children who had been diagnosed with “SID” were overly anxious and come from a family that includes others who suffer from an anxiety disorder.”

My argument:

First thing’s first. Ok, I’ll admit it: those of us with SPD are usually very anxious people. But why are we so anxious? Oh yes, it’s because our sensory difficulties make ordinary life tasks difficult and anxiety producing. I know for myself, anxiety and sensory issues are two separate things, but SPD can make my anxiety worse, and anxiety can make my SPD worse. However, I rarely confuse the two – or smush them together as one – because their symptoms manifest very differently.

Second, just because you haven’t personally met an adult with a sensory disorder does not mean that these people do not exist. I’m telling you – there are thousands of adults with SPD, many of us are living with no diagnosis for various reasons. Some of us struggle so immensely with our SPD that we cannot live normal lives. Thanks to the internet, many adults have reached out for help and found support. They are startled to find that their symptoms are shockingly similar – not just regarding anxiety, but symptoms such as extremely poor coordination, or severe distress around bright lights, or the inability to wear certain fabrics, or feeling ill around certain odors. These people are not autistic, yet they suffer from severe sensory issues.

hello hi im here

 

His argument:

“Since few (if any) adult patients have SID, it is reasonable to question whether costly interventions are really necessary for what are most likely self-limiting problems of neurodevelopmental immaturity and anxiety.”

My argument:

Am I “neurodevelopmentally immature?” Gee, I hope not. I like to think of myself as “neurodevelopmentally unique or divergent.” The different wording makes it sound less like I’m to blame for my own neurological problems, and it gives me more hope that I can manage my life better.

Costly research and interventions have helped change the lives of millions of people with neurological disorders. Without research and treatment exploration, people living with conditions such as autism, epilepsy, PTSD and other disorders of the brain would still be receiving inappropriate treatment, or none at all.  Some of these conditions were completely misunderstood and stigmatized until science  – and humanity – caught up. I want the same to be said for Sensory Processing Disorder.

Here is a link to a recent study that found quantifiable differences in the brain structure of children with Sensory Processing Disorder. This is the first time science has found biological evidence of SPD:

Breakthrough Study Reveals Biological Basis for Sensory Processing Disorders in Kids

 

His bottomline:

“Most children develop and improve their behavior spontaneously. Since few (if any) adult patients have SID, it is reasonable to question whether costly interventions are really necessary for what are most likely self-limiting problems of neurodevelopmental immaturity and anxiety. Well-designed scientific studies are needed to determine whether or not SID is a definable disorder, and even if so, whether the treatments currently prescribed are effective or necessary. Until studies along these lines are conducted, the diagnosis of SID should prompt a healthy degree of skepticism. Working with a friendly and relaxed therapist can be calming to children. I believe that families with children with behavioral or anxiety disorders would be better off getting standard treatment than investing time and money in unproven approaches.”

My bottomline:

Don’t rush into investing time and money on treating sensory issues before you truly know if sensory issues are the problem. Anxiety treatment is not the same as sensory treatment, but treating anxiety can help a person with sensory issues. Visit an Occupational Therapist to see if what you’re experiencing is SPD or something else. It’s rarely a good idea to self-diagnose and treat. An OT will be able to provide a diagnosis and treatment plan specifically designed to help sort out sensory issues.

Most importantly, adults with Sensory Processing Disorder do exist, and SPD is definitely not a dubious diagnosis.

 

Here is the link to the article by Mr. Heilbroner if you wish to read it in full:  http://www.quackwatch.com/01QuackeryRelatedTopics/sid.html

What are your thoughts on this topic?

-Kelly

The Day I Learned I Couldn’t Dance

 In other words, can my neurological condition take the blame for my lack of groove?

 

In a pathetic moment of hormonal-induced rage, my depressed, potato brain had created two options for itself:

1. run around and destroy local property and regret it later while in jail

2. find a sweet-ass dance video on youtube and dance my awful feelings into oblivion

Luckily for everyone, I selected option 2.

 

After throwing on some terrible pink shorts and a ugly maroon tank top, I was ready.

lord of the dance

Youtube provided a wide array of follow-along workout videos. I decided to watch the one with the most attractive, happy, and successful looking people. If I danced with them, I could become them. That’s how it’s supposed to work, right? They were led by her:

hot workout 1

Her name is Bipasha Basu; she’s a popular Indian actress with hair that flows and skin that glows.

At first, it was encouraging. All these attractive people dancing and exercising together to make themselves even more attractive. I too, was dancing with them. Bipahsa was talking to me; her incredible abs motivated me; her bronzed cleavage cheered me on.

 

It would be nice if my dance story ended here:

I danced into the sunset with Bipasha and the crew, as my mental health struggles melted away. Everyone was right – exercise does help!

 

Unfortunately, the story goes more like this:

Within approximately 7 minutes, I realized that I was not only struggling to dance along with Bipasha, but I was completely unable to dance at all.

As Bipasha and the rest of her gorgeous friends boogied effortlessly, I was unable to follow even the most basic dance instructions.

Literally, no exaggeration here:

me vs bipasha

To add to the incredibly low level of self worth I was experiencing, the dance moves became increasingly more difficult and soul-crushing – this one was referred to as the “sexy sway.” I’m not joking, look at the screen shot I took:

sexy sway oh god 2

I can assure you there was no swaying and there was definitely no sexiness on my end. If I had dance moves, they would probably be:

trex dance

SULTRY STUBBED TOE

ANXIETY

My dog Sam sat silently nearby, judging me. (Also, what a hypocrite! As if Sam can dance better than me! What’s his best dance move you ask? Probably the “Fantastic Fart.”)

JUDGING YOU

 

To add to the insanity, I danced in the privacy of my own bedroom, which is barely large enough to accommodate regular life activities, let alone dancing and dog lounging. Sam didn’t want to lay on my bed or in any surrounding area. No, he chose to sit right in the middle of my personal dance arena.

places to sit

What can only be described as some freaky, alien-esque aerobics, the experience left both me and the dog in a state of hyper confusion.

wave those arms!

 

Sam, not being the type to filter his facial expressions, or shower me with unconditional love as other dogs do, was clear about his opinion of me at the time.

what the crap

My only saving grace was in the few moments during the workout where Bipasha and the gang would march in place. I’ll have you all know that marching in place happens to be one of my special talents.

march workout 2

so good at marching

 

As I marched in place (into the sunset), I became comfortable with the fact that I cannot dance along to any sort of choreography at this time. (It also occurred to me that I should probably see a neurologist because WTF something is WRONG.) 

Maybe one day, when my brain decides to get with the program, I will join in the ranks of Bipasha’s aerobic dance team/squad/army. Until then, I will march on….in place, obviously.

xo kelly

 

 

 

 

 

 

 

 

 

 

Public Restrooms: A Guide for the Sensory Sensitive

Picture this: you are out and about in this great, big world – away from the comfort and security of your own bathroom. Suddenly, it hits you.

bathroom 1

You gotta go.

Perhaps it was those two three cups of tea you had this morning. Maybe you ate a sandwich and afterwards, you remembered sandwiches give you tummy troubles. How unfortunate! Whatever the case may be, you know now that your destination is only one place: the public restroom.

Depending on where exactly you are, your public restroom experience will be either “pretty bad,”extremely bad” or,”oh lord have mercy on me.”

If you’re like me, most public restroom experiences fall into the “oh lord have mercy on me” category. This is because not only do public restrooms suck all faith in humanity from my soul, but they are also SENSORY-DANGEROUS SPACES. What constitutes a SENSORY-DANGEROUS SPACE, you ask?

sensory dangerous spaces chart

Luckily for you, I’ve spent my whole life figuring out the best way to deal with public restrooms as someone with Sensory Processing Disorder. I will now bestow upon you, dear friends, the skills and swift tricks I have mastered to survive these dreaded moments.

1. Know your options

Before heading to your death in a public restroom, stop and think. Do I know of a nearby restroom which offers a BETTER sensory experience? Can I make it there in time? If yes, go there. Always know your options before making a commitment.

Within my first week of college, I made myself into a restroom expert of sorts. In my mind I created a mental map of the entire campus and all its restrooms. Each one had a rating scale of how sensory-dangerous it was. I carefully calculated the time it would take me to run from one class, across campus to use the least sensory-dangerous restroom, and back to my next class without being late. (It’s actually really sad that I had to run through this anxiety-producing drill every day at school, but beggars can’t be choosers….or something like that.)

2. Use your tools

If you’re like me, you keep an arsenal of sensory tools with you at all times. For my particular sensory needs, this includes: ear plugs, bigger ear plugs, noise-cancelling headphones, sunglasses, and a Wilbarger brush.

Much like preparing for battle, one must gear up before heading to a public restroom. There is no shame in this!

3. Go during safe times

If it can be avoided, use the public restroom at times when you will likely be the only one in there. Just one other person can reak havoc upon your restroom experience. Tread carefully!

If it is impossible for you to use the restroom during slower times, then option three is a total waste of time. I’m sorry I even created this option.

4. All about technique

So you find yourself in the restroom with multiple people doing multiple things. I’m talking about hand dryers, hand washing, toilets flushing, doors slamming, kids screaming, people talking loudly on their phones (which by the way, has me all “WTF talk somewhere else”), and many more!

Your tools can only go so far. It’s not about the tools you have, rather, it’s how you use them. It’s time to explore the Techniques for Public Restroom Sensory Safety and Survival, or as I call it: TPRSSS, (pronounced “te-purrs”).

Technique 1: Wash ‘n Go

After you’ve done the business, it’s time to rid yourself of those pesky germs. But wait! Oh no! The restroom is crowded with people using those hand dryers that sound like commercial airliners taking off. For this technique, wash your hands and RUN. Dry on your own time – those hand dryers will wait for no one.

RUIN YOUR DAY

Technique 2: Be aware of your neighbors.

Are your fellow restroomers about to flush and unleash a windstorm of sudden, loud toilet sounds? Be prepared and mindful of your neighbors. Don’t let an unexpected flush or door slam set you off into panic mode.

Technique 3: The Cold Shoulder

In a moment of haste, you may have forgotten to wear hearing protection before entering the restroom. Fear not! In this situation, cover your ears and use your shoulder to take the place of one hand when that hand is in use. Observe the following diagram:

bathroom technique 1

Technique 4: Run, Forest, Run

Move quickly. You are a cheetah in the fast-lane. Slow and steady will not win the race for you when you’ve got sensory issues in the restroom.

Technique 5: Mental Stamina

Here’s the situation: you gotta go, but the restroom is crowded and way too overstimulating for you right now. But you’ve been here before. It’s time for you to use your mental powers to convince yourself that you really don’t have to go at all. Need to pee? Not anymore. Why? YOUR MIND TOLD YOU SO. This technique requires time and patience, but once mastered, it may be your saving grace in a desperate situation.

BRAIN POWERS ACTIVATE

In conclusion, restrooms are a sensory nightmare. But, with the right techniques, you CAN survive the experience.

As I lay awake at night, pondering the insanity that is life, I imagine a world where people with Sensory Processing Disorder can use public restrooms with ease. I dream of quieter toilets, and paper towels for hand drying, maybe even less fluorescent lighting! Let us end the reign of restroom misery!

One day I will enter a public restroom less like this:

bathroom fear

And more like THIS:

make way peasants

xo kelly

Got any other sensory-related restroom advice? Let me know in the comments!

 

 

Infants sound like goats

Jolly good news, internet friends: as of October 2nd, I am an auntie!

The squishy bundle arrived early Friday morning, to greet and delight us with his tiny human-ness. His name is Liam, and here is a drawing I made after I first saw him:

burrito liam

The past several months have been a whirlwind of anxiety, laughter, and mostly anxiety while my family awaited his arrival. My younger sister, Shannon, was a cool pregnant person.

Many women develop strange eating habits during their pregnancy. My sister craved perhaps the strangest food combination: pickles and oreos. Yes, you heard it right. Often, the two foods would be consumed together. *shudders*

Months went by, often accompanied by Shannon’s hormonal rages and short bursts of loathing.

super preg

DESTROY THIS WATER

Five minutes later…

sorry i was terrible

KELLY WONT LOVE ME

After the baby arrived, I quickly became aware of the secrets of baby sounds. So mysterious, yet so informative they are! I’ve decided to use advanced scientific formulas and diagrams to show you, the people at home, exactly what baby noises really mean.

  1. Show me the poop

diaper cry

2. Not feeling it

dont feel like crying

3. Back in my day, I used to be comfy

body position cry

 

4. Is it time to panic? I’m panicking.

lost suction cry

5. A light, tropical breeze of sorts

special surprise cry

6. Whatever bro

funny sounds cry

 

7. Meanwhile, on the farm

goat cry

If those graphs don’t make sense, I honestly don’t know what does. I may have never produced more clear information in my life. The bottom line: newborn babies are squirmy little creatures and they often sound like goats. The sounds they make are varied and complex, like an ancient language. Perhaps someday in the future, the power of science can break down these cryptic coos to reveal extraordinary genius.

Does this not look like a genius to you?

liam bird

xo kelly

 

The Real Restroom Dilemma

Last summer, Momsy and I attended an Arts and Crafts Fair. After bopping around from one crafter to the next, we needed a bathroom pit stop. Luckily for us, there were actual bathrooms at this fair – not a porta potty in sight. Unfortunately for me, those bathrooms were very noisy, and included my least favorite thing ever: air-powered hand dryers.

At the bathroom building, I informed Momsy that I did not, in fact, have to pee.

I lied.

i lied

Was my bladder going to explode if the internal pressure was not released at that very moment? Probs not. But there was no way I was going into the noisy restroom.

I waited patiently outside for Momsy, watching women join the long line for the restrooms, then watching them exit after several minutes. The roar of the hand dryers, women talking, and the toilets flushing collided with the quieter sounds of the world outside as I stood baking in the bright sun, like a cookie.

Walking past me came a woman pushing another woman in a wheelchair. The woman in the wheelchair was missing her one leg below her knee. The pair were heading towards the restroom line.

Suddenly, a young volunteer working at the fair asked the woman, “are you headed to the bathrooms?

The woman in the wheelchair replied, “yes.”

The volunteer said, “oh, come this way, this the employee bathroom, but you can use it.”

The two women thanked her casually and followed her past a security gate and into another small building.

That moment resonated with me. The woman in the wheelchair was clearly disabled – anyone could see both the wheelchair and the fact that half her leg was not there. The volunteer did the right thing by trying to make life easier for her by accommodating her needs and allowing her to use a separate, less crowded bathroom.

I began to imagine if I had asked that same volunteer if I could also use the private bathroom. I envisioned myself explaining – in my awkward-while-trying-to-be-confident manner –  about my sensory processing disorder, and how the normal bathrooms were very uncomfortable – in this case, impossible – for me to use.

I could see her making that “ehhh” face, the one where she isn’t buying it, but she doesn’t want to look like an absolute idiot either. She responds with something along the lines of “well, you see, that bathroom is for employees only. I’m sorry but I don’t really work here. I’m just a volunteer, and I don’t think it would be allowed.”

the ehh face

If I was a true badass of disability equality and advocacy, I might say something along the lines of, “But I noticed you allowed that other disabled woman to use that restroom. I was hoping I could also be accommodated because of my special needs.”

Next, perhaps, she would create some kind of excuse for her decision, like “I allowed that woman to use the other restroom because her wheelchair would be too big for the regular restroom.”

OrI didn’t want her to have to wait on the long line.”

Or maybe even, “She is in a wheelchair so she has a disability. You are clearly a fully-functioning person because I cannot see any visible sign of a problem. So you cannot use the other bathroom because you are a liar and you are trying to mooch the system. SHAME….SHAAAAAAMMEE.”

Was there a small chance that this volunteer would allow me to use the private restroom after I politely explained my situation? Of course. But that small chance was probably very, very small. And for some reason, I would end up feeling guilty asking for this accommodation in the first place.

The whole moment made me think about every person with an invisible illness or disability or condition. Our lives are spent trying to make the best of a world that doesn’t seem too eager to accommodate our particular needs. Whether those needs are closer parking spaces, equal treatment in school or at work, or the need to use a different restroom when one is available.

As a teenager, I used to wear brightly colored earplugs to visually remind those around me about my condition (aside from using them for hearing protection, too). Without them, I’m certain most people would have completely forgotten about my severe sensitivity to sound and things would have been more miserable then they already were. I used to jokingly tell Momsy that I wished I was in a wheelchair because maybe then people would respect and understand my needs once they saw a visual sign of a problem. How sad is that?

Would it be tacky of me to walk around with a massive sign drapped over my shoulders, reading: PERSON WITH NEUROLOGICAL CONDITION. MAY REQUIRE SPECIAL SERVICES?

perosn with condition

I wish I didn’t have to feel that way, but that’s how much of our society thinks of differently-abled people, and that’s how desperate I am to make things easier.

As we left the arts and crafts fair that day, Momsy and I talked about it. I said, “What if a mother and her young, autistic son asked to use separate bathroom and were turned down, even after the mother explained her situation?” Momsy replied, “They would’ve had to use the regular restroom and the boy would’ve been very upset in there, and the mother would be frustrated and tired.”

I mumbled something like, “that’s not fair. Life sucks. Can we get ice cream?”

tps

And so we got ice cream, and I peed when we got home (in case you were concerned).

The Attic

Some people have stairs leading to their attic. Some people don’t even have an attic. Then there are some people, like my parents, who had a ladder leading up to the attic.

The attic; a strange, foreign land of trinkets from years past, balls of tangled Christmas lights, and deadly creatures. My childhood fascination with such a space overwhelmed me. In the rare moments when the attic door was opened and the ladder would reveal itself, my insides tingled anxiously. It was as if I was staring into the vast reaches of outer space; the universe in all its complexity and mystery lay just beyond the top of the ladder. Green slime oozed from the edges of the attic, surely an indication of some other-worldly experience.

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I was enamored with the attic. It was terrifying and amazing; it was terrifazing. Amazifying? Whatever. My youthful spirit longed to know of its secrets.

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Soon enough, that fated day arrived when I would experience the attic. Dad needed to retrieve something in a box up there, and I saw my golden opportunity. This is it, I thought to myself, this is your moment.

With my emotional security blanket (which I named Star) tied firmly around my neck like a cape, I began to ascend the ladder.

How I thought it was:

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How it really was:

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As the wind began to pick up, I tightened Star around me and secured my grip on the ladder. Nearly at the top, there was no telling what awaited me. The anticipation was overwhelming.

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Alas! I had reached the surface to discover a world of boxes filled with junk I didn’t really care about, yet I was overjoyed to explore this new, vast wilderness.

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After what seemed like only a few minutes (probably because it only was a few minutes), I heard the call of my parents from the world below. It was time to descend the ladder and bid farewell to the new world.  As I crept near the opening from which I came, it occurred to me exactly how high up I was. The task ahead required me to turn and go down the ladder. Thanks to my sensory problem, this seemingly simple action became my equivalent of bungy jumping off the empire state building into a pit of blood-thirsty wolves.

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With this revelation began a true anxiety meltdown in the four foot high space on the attic. No amount of coaxing or words of reassurance from my family below were alleviating my overwhelming panic. The prospect of having to go backwards down the ladder was truly disturbing and frightening to me. As an adult looking back on the situation, I agree with my childhood self for getting upset. This was a totally rational situation to meltdown over.

It was during mid-crisis in the attic when I realized that the attic was a slightly creepy place to be. Looking around, it became clear to me that there was plenty of potential for evil creatures to jump out of the darkness and swallow me whole. Above me, giant nails protruded through the ceiling, as if a monster was clawing at the house trying to get me. (I later realized these were nails which held the shingles in place.) But things got worse. The beams supporting the roof were covered in some sort of gross, sticky brown substance. A Christmas tree loomed in the corner, ready to attack me with holiday cheer. An old toy doll …well, let’s just say she was the new bride of Chuckie.

I wrapped my blanket, Star, around my head like a veil. It was my only ally and source of protection in this strange and dangerous land.

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The minutes passed as my family failed to convince me to climb back down the ladder. I became a incoherent blob. As far as I was concerned, I was never coming down. This would be where I’d spend the rest of my sorry little life. My fate hit me like a ton of bricks.

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Suddenly, Dad appeared at the top of the ladder. Again, I assured him I would not be making the descent back to the mortal world. He managed to convince me to hold onto him and close my eyes. He held me and climbed down the ladder; it was the scariest 3 seconds of my young life. I felt like Carol Anne as she was sucked away from the demons of the underworld in that movie, Poltergeist. I can’t believe we made it down alive. To be able to live among my earth family yet again was such a relief.

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To this day, climbing any kind of ladder disorients my body and mind. The fear takes me back to that fated day in the attic. Will I ever be able to conquer this body-ladder coordination conundrum? Only time will tell.

attic 13

Also, F.U. to my sensory problems. Struggling to stand on a basic 2-step ladder is super embarrassing and mildly inconvenient.

xo kelly

The Big Band-Aid Calamity

A few months ago, I was cutting some mat board to put with a framed drawing. Tragically, I lost my grip on the mat knife and accidentally sliced my left index finger.  I grabbed my finger tightly and ran to the bathroom where, luckily for me, Momsy was there to assist me with my new wound.

The minute I released my hand on my finger, blood began to pour. It was like a horror movie, (if that horror movie was about Momsy and I standing in the bathroom, and I was just saying “ow, ow, ow”). TERRIFYING.

We wrapped it up quickly as a dull throb slowly began to overtake my whole hand. I’m lucky to be alive, honestly.

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After a while, we re-wrapped the large cut with proper bandages and gauze. It wasn’t until this moment that I realized the doom which I now faced.

The new bandage monstrosity on my tiny finger was a huge sensory turnoff. I mean, HUGE.

I couldn’t for the life of me stop sensing the bandages on my finger. It wasn’t the pain, which was slightly annoying, rather, the heap of gauze, tape, and other junk piled onto my finger tip was like an assault on my entire sensory system. I’m not kidding you when I say that the illustration below displays the actual bandage to finger ratio:

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Two days passed and still, the bandage predicament consumed my thoughts and will to live. My family informed me that I have been walking around the entire time with my finger stuck out awkwardly. Humiliated and moody, I told them that I had no idea that I was doing that, and further, I couldn’t seem to control it. I’d try to push it down into normal finger position, but it would pop right back up like a jack-in-the-box.

STITCHES 5

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STITCHES 8

A week passed, and still my ugly finger wound was relentless in its quest to destroy me via sensory tactile WARFARE.

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As a child, I had similar reactions to things like denim, tags in clothing, or socks that became awkwardly bunched in my shoe. I referred to the sock problem as a “coo-eee.” All were the cause of extreme distress. Parents with sensory kids, I know you feel me right now.

As an adult, I’ve managed to conquer the denim thing, but the same cannot be said for the clothing tags and sock cooees. Sensory adults, I know you feel me right now.

The giant band-aid was merely the tip of the iceberg, so to speak. If I was having a bad sensory day, my band-aid finger was sure to put me over the edge.

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Thankfully, because the world is merciful, I was upgraded to a single band-aid after two weeks. I saw the light at the end of the tunnel. Perhaps there was hope after all!

One morning, that glorious day had arrived where I needed no band-aid whatsoever. My finger was free! And so was I.

All that remains now is a scar on my finger tip – the memory of a harrowing three-week period of sensory insanity. I will never again underestimate the mental anguish that a bandage can cause. More importantly, my finger returned to its resting position, and life went on. My tiny scar and I became very close.

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xo kelly